I’ve been struggling lately with managing and balancing my fears surrounding Rett Syndrome and my daughter’s life. After her diagnosis we...

I’ve pulled together a small gift guide to give you some ideas of how you can slip inclusion into your kids stocking or under the tree...

School is a huge part of our lives. We’re so lucky to live in a part of the world where we can all attend and learn. Or so we think....

Grief: intense sorrow, especially caused by someone's death. We will all experience grief in our lives. Perhaps at a young age, from a...

School placement day. And another milestone where we’re absolutely nowhere I ever imagined or hoped to be. Part of the draw to our home...

"We never taste happiness in perfection, our most fortunate successes are mixed with sadness." - Pierre Corneille. Alba had her first...

What a year. The toughest to date. And unfortunately possibly not the toughest to come. This time last year we were weeks into life with...

A couple of weeks ago we received Alba's specialist buggy. It's essentially a wheelchair. This has been a big move for us, and one that...

The last couple of months have been a bit of a whirlwind. Our 100km hike came round far too quickly at the beginning of June. We walked...

I began this post a few weeks ago, before things escalated with Alba's breathing and the seizures started. Now more than ever, I feel...

Social media is mostly full of happy highlights of life. This post is far from one of those. I started this blog to document our journey...

As World Mental Health day has just passed, I thought it may be a good time to offer some insight to the emotional highs and lows that...

I am definitely finding it helpful noting down the little wins we have with Alba. Progression is very slow, in fact we've been pretty...

2 full days done at nursery, just like that! When I was 7 months pregnant, we moved house. We were chuffed that the local village primary...

Yesterday morning I had a real down moment. I'm definitely getting better at carrying on and looking for the bright things and the sunny...

Having spent so long focusing on the things Alba can't do, and ticking 'no' to endless development questions, I think it's time to focus...

Isolation is a word we've all become a bit too familiar with over the past couple of years. Before Alba was born I'd tried to prepare...

I had such an overwhelming response to my first post. I knew this was something that would get a reaction, just wasn't sure what kind and...

I've been wanting to record and share our journey for a while now but haven't know how. A big part of me has felt that it's Alba's story,...